Cross-Cultural Adaptation of the Social Vulnerability Index for Use in the Dutch Context.
Int J Environ Res Public Health. 2017 Nov 14;14(11):
Authors: Bunt S, Steverink N, Andrew MK, Schans CPV, Hobbelen H
Being able to identify socially frail older adults is essential for designing interventions and policy and for the prediction of health outcomes, both on the level of individual older adults and of the population. The aim of the present study was to adapt the Social Vulnerability Index (SVI) to the Dutch language and culture for those purposes. A systematic cross-cultural adaptation of the initial Social Vulnerability Index was performed following five steps: initial translation, synthesis of translations, back translation, a Delphi procedure, and a test for face validity and feasibility. The main result of this study is a face-valid 32 item Dutch version of the Social Vulnerability Index (SVI-D) that is feasible in health care and social care settings. The SVI-D is a useful index to measure social frailty in Dutch-language countries and offers a broad, holistic quantification of older people’s social circumstances related to the risk of adverse health outcomes.
PMID: 29135914 [PubMed – in process]
Reducing discrepancies of personal goals in the context of cancer: A longitudinal study on the relation with well-being, psychological characteristics, and goal progress.
Br J Health Psychol. 2017 Sep 27;:
Authors: Pama MR, Janse M, Sprangers MAG, Fleer J, Ranchor AV
OBJECTIVES: To (1) examine whether reducing discrepancies between goal importance and goal attainability is an adaptive predictor of well-being, (2) investigate intrusion, awareness, optimism, and pessimism as determinants of reducing discrepancies between goal importance and goal attainability, and (3) explore how goal progress is involved in reducing discrepancies between goal importance and goal attainability during two major periods after a colorectal cancer diagnosis.
DESIGN: Prospective design.
METHODS: Newly diagnosed colorectal cancer patients (n = 120) were interviewed three times: within a month, 7 months (treatment period), and 18 months (follow-up period) post-diagnosis. Data were analysed using multiple regressions.
RESULTS: Results showed that (1) reducing discrepancies enhances well-being, (2) optimism and pessimism are predictors of reducing discrepancies during the treatment period but not during the follow-up period, while intrusion and awareness do not predict reducing discrepancies in either period, and (3) goal progress is a predictor of reducing discrepancies during the follow-up period, but no evidence for a moderating or mediating role of goal progress in the relation between psychological characteristics and reducing discrepancies was found.
CONCLUSIONS: Reducing discrepancies between goal importance and goal attainability could benefit colorectal cancer patients’ well-being. Optimism, pessimism, and goal progress appear to influence cancer patients’ ability to reduce discrepancies. Providing assistance in improving goal progress to those who are less optimistic and highly pessimistic may be a suitable training for cancer patients to prevent deterioration in well-being. Statement of contribution What is already known on this subject? More discrepancy between goal importance and goal attainability is associated with lower levels of well-being. People are able to change evaluations of importance and attainability, but it is unknown whether this positively impacts well-being. Underlying causes of differences in the extent to which discrepancies between goal importance and goal attainability are reduced are unknown. What does this study add? This is the first study to show that reducing discrepancies between goal importance and goal attainability is beneficial for well-being. This is the first study to show that optimism and pessimism are determinants of reducing discrepancies between goal importance and goal attainability. Goal progress might be an effective target for interventions that aim to facilitate one’s ability to reduce discrepancies between goal importance and goal attainability.
PMID: 28960718 [PubMed – as supplied by publisher]
Social frailty in older adults: a scoping review.
Eur J Ageing. 2017 Sep;14(3):323-334
Authors: Bunt S, Steverink N, Olthof J, van der Schans CP, Hobbelen JSM
Social frailty is a rather unexplored concept. In this paper, the concept of social frailty among older people is explored utilizing a scoping review. In the first stage, 42 studies related to social frailty of older people were compiled from scientific databases and analyzed. In the second stage, the findings of this literature were structured using the social needs concept of Social Production Function theory. As a result, it was concluded that social frailty can be defined as a continuum of being at risk of losing, or having lost, resources that are important for fulfilling one or more basic social needs during the life span. Moreover, the results of this scoping review indicate that not only the (threat of) absence of social resources to fulfill basic social needs should be a component of the concept of social frailty, but also the (threat of) absence of social behaviors and social activities, as well as (threat of) the absence of self-management abilities. This conception of social frailty provides opportunities for future research, and guidelines for practice and policy.
PMID: 28936141 [PubMed]
Do good self-managers have less physical and social resource deficits and more well-being in later life?
Eur J Ageing. 2008 Sep;5(3):181-190
Authors: Steverink N, Lindenberg S
Proactive self-management is likely to be part of resource maintenance and well-being in later life, but empirical evidence is scarce. Therefore, we investigated (a) whether self-management ability (SMA) is associated with lower resource deficits, and (b) whether it is related directly and indirectly to life satisfaction (LS), positive affect (PA) and negative affect (NA). Regression and mediational analyses (N = 439, aged 65 years and older), showed that SMA related to resource deficits, and had direct associations with the three well-being indicators. Indirect associations-via lower resource deficits-were found for LS, whereas the association between SMA and PA was mostly a direct one, being mediated only to a small extent by physical resource deficits. The association between SMA and NA was mediated only by social resource deficits. It is concluded that better SMA seems to matter to resource maintenance and well-being, but future research needs to unravel the differential findings for physical and social resource deficits and for the separate well-being indicators.
PMID: 28798571 [PubMed]
Emodiversity: Robust predictor of outcomes or statistical artifact?
J Exp Psychol Gen. 2017 Sep;146(9):1372-1377
Authors: Brown NJL, Coyne JC
This article examines the concept of emodiversity, put forward by Quoidbach et al. (2014) as a novel source of information about “the health of the human emotional ecosystem” (p. 2057). Quoidbach et al. drew an analogy between emodiversity as a desirable property of a person’s emotional make-up and biological diversity as a desirable property of an ecosystem. They claimed that emodiversity was an independent predictor of better mental and physical health outcomes in two large-scale studies. Here, we show that Quoidbach et al.’s construct of emodiversity suffers from several theoretical and practical deficiencies, which make these authors’ use of Shannon’s (1948) entropy formula to measure emodiversity highly questionable. Our reanalysis of Quoidbach et al.’s two studies shows that the apparently substantial effects that these authors reported are likely due to a failure to conduct appropriate hierarchical regression in one case and to suppression effects in the other. It appears that Quoidbach et al.’s claims about emodiversity may reduce to little more than a set of computational and statistical artifacts. (PsycINFO Database Record
PMID: 28846007 [PubMed – in process]
Am I a 6 or a 10? Mate Value Among Young Adult Survivors of Childhood Cancer and Healthy Peers.
J Adolesc Young Adult Oncol. 2017 Aug 07;:
Authors: Lehmann V, Tuinman MA, Keim MC, Hagedoorn M, Gerhardt CA
PURPOSE: This study focused on self-perceived mate value of young adult survivors of childhood cancer relative to healthy peers. Qualitative studies indicate potential problems surrounding romantic relationships among survivors, but systematic studies are missing.
METHODS: One-hundred forty-nine childhood cancer survivors and 149 matched controls completed online questionnaires about their mate value, social comparison strategies (i.e., upward/downward identifying/contrasting strategies), and marital status. Survivors and controls were aged 20-40 (M = 27.8), 55% were female, and survivors had been treated for brain tumors (n = 52; 35%), leukemia (n = 42; 28%), lymphoma (n = 31; 21%), or other solid tumors (n = 24; 16%) at 5-33 years before study participation.
RESULTS: Survivors and controls did not differ on overall mate value, but on individual characteristics: Survivors thought they had a better sense of humor (d = 0.36), were more loyal (d = 0.32), had higher social status (d = 0.26), and were more ambitious (d = 0.19), while also considering themselves less sexually adventurous (d = 0.31), less healthy (d = 0.26), having less desire to have children (d = 0.21), and a less attractive face (d = 0.20). Higher mate value was related to being partnered, more upward-identifying, less upward-contrasting, and less downward-identifying strategies. Moreover, less downward-identifying was associated with higher mate value in survivors, but not controls; whereas greater downward-contrasting was associated with higher mate value among controls only (R(2) = 30.8%).
CONCLUSIONS: Survivors do not generally view themselves as less valuable (potential) romantic partners, but they evaluate different characteristics either more positively or more negatively. Social comparison strategies offer targetable points of interventions to intervene on negative self-evaluations, potentially enhancing well-being.
PMID: 28783412 [PubMed – as supplied by publisher]
The impact of older person’s frailty on the care-related quality of life of their informal caregiver over time: results from the TOPICS-MDS project.
Qual Life Res. 2017 May 31;:
Authors: Oldenkamp M, Hagedoorn M, Wittek R, Stolk R, Smidt N
PURPOSE: To examine the impact of changes in an older person’s frailty on the care-related quality of life of their informal caregiver.
METHODS: Five research projects in the TOPICS-MDS database with data of both older person and informal caregiver at baseline and after 12 months follow-up were selected. Frailty was measured in five health domains (functional limitations, psychological well-being, social functioning, health-related quality of life, self-rated health). Care-related quality of life was measured with the Care-Related Quality of Life instrument (CarerQoL-7D), containing two positive (fulfilment, perceived support) and five negative dimensions (relational problems, mental health problems, physical health problems, financial problems, problems combining informal care with daily activities).
RESULTS: 660 older person/caregiver couples were included. Older persons were on average 79 (SD 6.9) years of age, and 61% was female. Caregivers were on average 65 (SD 12.6) years of age, and 68% was female. Results of the multivariable linear and logistic regression analyses showed that an increase in older person’s frailty over time was related to a lower total care-related quality of life of the caregiver, and to more mental and physical health problems, and problems with combining informal care with daily activities at follow-up. A change in the older person’s psychological well-being was most important for the caregiver’s care-related quality of life, compared to the other health domains.
CONCLUSIONS: Health professionals observing decreasing psychological well-being of an older person and increasing hours of informal care provision should be aware of the considerable problems this may bring to their informal caregiver, and should tailor interventions to support informal caregivers according to their specific needs and problems.
PMID: 28567602 [PubMed – as supplied by publisher]
The role of pain behaviour and family caregiver responses in the link between pain catastrophising and pain intensity: A moderated mediation model.
Psychol Health. 2017 Apr;32(4):422-438
Authors: Mohammadi S, Dehghani M, Sanderman R, Hagedoorn M
OBJECTIVES: This study investigated the mediating role of pain behaviours in the association between pain catastrophising and pain intensity and explored the moderating role of family caregivers’ responses to pain in the link between pain behaviours and pain intensity.
METHODS: The sample consisted of 154 chronic pain patients and their family caregivers. Patients completed questionnaires regarding pain intensity, pain catastrophising, pain behaviours and their caregivers’ responses to their pain. Family caregivers reported their responses to the patients’ pain.
RESULTS: Pain catastrophising was associated with pain intensity (r = 0.37) and pain behaviours partly mediated this association. The positive association between pain behaviours and pain intensity was significant only if patients reported that their family caregivers showed high levels of solicitous (effect = .49) and distracting responses (effect = .58), and if caregivers reported to show high levels of solicitous responses (effect = .51). No support was found for negative responses as a moderator neither based on patients’ perception of negative responses nor based on caregivers’ perception of negative responses.
CONCLUSIONS: The findings are in line with the idea that family caregivers’ solicitous and distracting responses convey to patients that their condition is serious, which may reinforce patients’ pain and pain behaviours, especially in those who catastrophise.
PMID: 28042705 [PubMed – in process]
Sustaining program effectiveness after implementation: The case of the self-management of well-being group intervention for older adults.
Patient Educ Couns. 2017 Jun;100(6):1177-1184
Authors: Goedendorp MM, Kuiper D, Reijneveld SA, Sanderman R, Steverink N
OBJECTIVE: The Self-Management of Well-being (SMW) group intervention for older women was implemented in health and social care. Our aim was to assess whether effects of the SMW intervention were comparable with the original randomized controlled trial (RCT). Furthermore, we investigated threats to effectiveness, such as participant adherence, group reached, and program fidelity.
METHODS: In the implementation study (IMP) 287 and RCT 142 women participated. We compared scores on self-management ability and well-being of the IMP and RCT. For adherence, drop-out rates and session attendance were compared. Regarding reach, we compared participants’ baseline characteristics. Professionals completed questions regarding program fidelity.
RESULTS: No significant differences were found on effect outcomes and adherence between IMP and RCT (all p≥0.135). Intervention effect sizes were equal (0.47-0.59). IMP participants were significantly less lonely and more likely to be married, but had lower well-being. Most professionals followed the protocol, with only minimal deviations.
CONCLUSION: The effectiveness of the SMW group intervention was reproduced after implementation, with similar participant adherence, minimal changes in the group reached, and high program fidelity.
PRACTICE IMPLICATIONS: The SMW group intervention can be transferred to health and social care without loss of effectiveness. Implementation at a larger scale is warranted.
PMID: 28089311 [PubMed – in process]
Delay in diagnosis of testicular cancer.
J Clin Oncol. 2004 Jul 15;22(14_suppl):4602
Authors: Fleer J, Sleijfer DT, Hoekstra-Weebers JE, Hoekstra HJ
4602 Background: Delay in presentation of a testis tumor may result in an advanced stage of disease at diagnosis, which may affect disease free and overall survival. The aim of this study was to determine variables related to delay in diagnosis of testicular cancer (TC).
METHODS: A questionnaire was developed to assess patient delay (time from first symptom till first consultation with general practitioner (GP)) and doctor delay (time from first consultation with GP till final diagnosis). In addition, patient and disease characteristics possibly related to patient and/or doctor delay, were collected: age, marital status, educational level, extensiveness of the disease (stage I vs disseminated disease), number of symptoms, change in testicle as a symptom, pain as a symptom, patients’ knowledge of TC, appraisal of symptoms as threatening, embarrassment, and whether the doctor referred the patient immediately for further examination.
RESULTS: 48 men (median age 25, range 16-44 years) who were consecutively referred to the Groningen University Hospital completed the questionnaire. Median patient delay was 30 (range 1-365) days. Only educational level correlated with patient delay (r=-.30, p=.03). Median doctor delay was 14 (0-240) days. After first consultation, only 20 patients (42%) were immediately referred for further examination. The remaining 28 patients were not immediately referred, which led to a significantly longer doctor delay (median = 23 days, t=-4.47, p90 days. Age was significantly related to total delay (r=-.33, p=.03). Six patients (12.5%) did not have a change in testicle as presenting symptom, but this was not related to delay. Extensiveness of disease was not related to delay.
CONCLUSIONS: Surprisingly, having disseminated disease and having a change in a testicle as presenting symptom were not related to delay, but younger and lower educated men appeared to be more likely to report delay in diagnosis. Over half of the men were not immediately referred for further examination, resulting in a significantly longer GP delay. This finding stresses the responsibility of GPs in the diagnostic process of TC. No significant financial relationships to disclose.
PMID: 28015713 [PubMed – in process]